My life with fibromyalgia, there is no recipe for that

Deutsch
Piece of mind | Es kein Rezept für ein Leben mit Fibromyalgie

 

Welcome into my life with fibromyalgia. Perhaps someone of you has already heard about it or read about it. It is a chronic pain illness, which is still a little unknown and is not fully acknowledged yet. And that makes it difficult for us who have this chronic pain illness.

Fibromyalgia

I’ve had a very long time the idea to write about this chronic pain illness in my blog. I’ve also considered whether I should run another blog next to my actual blog. But now I have decided to tell this story too and to give you a little insight into my life, besides my recipes. My life with fibromyalgia.

What is it about fibromyalgia?

On the medical side, fibromyalgia is a non-inflammatory rheumatic disease. This disease can’t be detected by inflammatory values in the blood like other rheumatic illness.

It is a so-called chronic pain disorder. You always feel pain in different body regions, which always wander through your body, always in other places. It is a strong, stinging, burning pain. This disease comes up with flares who are sometimes stronger, sometimes less strong. You can’t tell when the flare is coming. Somedays it’s a little bit better, the other day is getting worse.

This chronic pain disorder is followed by mood swings up to deep depression. You feel wheezed, after a sleepy night.

Fibromyalgie

Every day is a new challenge. Every day is planned in the here and now.

The worst thing that I’ve noticed is the weather. Especially when the weather is changing, I know that a few days earlier because my body reacts with pain and flares. Every movement hurts sometimes, even for the little movements, you don’t have any energy, you feel tired and exhausted.

A life with this chronic pain disorder with a little child wasn’t quite easy. I couldn’t make many activities, or only after checking my daily form.

Today, my child is able to understand that. He now knows when his mum is not doing well and then stands with his help at my side.

My husband is always there for me. Sometimes helpless, because he likes to do more. I thank God that I have my small family around me, who is always there for me, who supports me.

Because of this chronic pain disorder, I got problems in my workplace at that time, because I was very often missing. I was employed in the public service. Only then was not clear that I have fibromyalgia. It was until 2013. But I have pain attacks since the age of 25 and I am convinced that I have since then this chronic pain disorder.

Since 2009 I am now at home and try to do my job as a mother and housewife as well as I can. This was a new challenge in my life too because I’ve always gone to work. This chronic pain disorder makes it not easier to join a new job. To be honest, which boss will hire a person with a chronic pain disorder. And a mother with a child certainly not. Unfortunately, this is an experience which I’ve made very often. But this is definitely a different topic which I like to share another time with you.

This struggle is a challenge to fight every single day. Not every day is the same. There are good days and there are the bad days when I would like to run away and hide. But I am thankful that my family gives me a reason not to run away and hide! 😉

It took me a long time to get out of a depression because this situation took so much strength out of me.

Meanwhile, I have come out of the darkness and have learned to enjoy the good days with this chronic pain disorder and to take the bad days so as they are. My motto here is: Everything will be fine! 😉

T. S. Elliot

What really helps me to distract myself is my work as a blogger. I am really happy to meet new people, get inspiration and share inspiration!

I am working intensively on this blog and am really doing this with a lot of love and work and try to find another way to earn a little money. A long difficult road, yet I want to go it!

I want to thank you all for your support!

Nice to have you!

Yours

Emmi

 

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22 thoughts on “My life with fibromyalgia, there is no recipe for that

  1. It’s great to hear about your story. I am also trying to spread awareness with my journey, living with CFS/ME, Fibromyalgia and Pernicious Anaemia. I hope to inspire people as you have inspired me x

    Liked by 1 person

  2. Hi Emmi! I have fibromyalgia too. I have a tiny family like yours except our “child” is a sweet 🐕 named Mackie.

    NMy husband supports me in many ways besides financially. Sounds like your husband makes it all possible just like mine does.

    I haven’t worked since 2000. I first had to stop working because of my bipolar. 3 years ago I was diagnosed with fibromyalgia after a two year nightmare of pain and fear. I’m doing pretty well right now, yay! I’ve been painting for the last 8 years. 🙂

    I’d be happy to talk about fibro or pain or whatever with you!
    Nice to meet you!

    Liked by 1 person

    1. Hi Ruthi! 😉
      I’m so happy to read your wonderful words 😉 I’d would apprecciate to talk about fibro (but not only!) with you!! Happy to be connected!! 😉
      I wish you a wonderful Friday and a good start into the weekend! 😉
      I’ll jump right over to you! 😉
      – Emmi

      Liked by 1 person

      1. Hi Ruthie! 😉
        I’m passing through a pain period right now. It’s the change of the weather here in Germany from winter to spring. A lot of storms and rainy weather. But I try to make the best out of it!
        What about you? I hope you’re feeling good.
        Thank you so much for asking!! 😉 I wish you a wonderful weekend! 😉

        Liked by 1 person

  3. Emmi, I know it is hart and scary. I am having ATN with two children age 8 and 10. They call it the TN monster… 😉 Having a chronic pain condition with family and work isn’t easy and often we are misunderstood. Aber wir schaffen das. Jeden Tag… es gibt so viel zu Lächeln. Auch wenn wir es nur innerlich in uns tragen und nicht zeigen können. Eins davon sind unsere Kinder…

    Liked by 1 person

    1. Hallo!! 😉 Danke für diese wunderschönen Worte! Ja, wir schaffen das und es ist wirklich so, es gibt so viele kleine Dinge im Leben, die mich Lächeln lassen und mir jeden Tag Kraft geben! 😉 Und ja, eine davon ist mein Sohn und mein Mann 😉

      Liked by 1 person

  4. It was lovely to read about your honest and open journey about living with Fibromyalgia. I started a blog talking about my life with Fibromyalgia and I do feel like it helps. I have been able to talk and reach out to so many wonderful people and I have found it to be a good outlet. It can often be difficult to express how you are feeling so by writing it down it can help you organise your thoughts. Reading your post was very inspiring as you take each day as it comes and embrace the bad days as much as the good. I have also had to leave work as the demand was too much for my body to handle and I am looking for something I can do from home.
    Thank you for writing this post and sharing your story as well as spreading awareness of a condition that is still very much unheard of. I look forward to reading more posts.
    Take Care 🙂

    Liked by 1 person

  5. Emmi so sorry to hear what you deal with on a daily basis. Being in constant pain must be overwhelming. Having a family that supports us makes everything so much better. Wishing you everything of the best! #globalblogging

    Liked by 1 person

  6. wow that is just so much to face, and you’re right with a young child is is so hard to make them understand that mummy is in pain and can not do certain things on certain days. I used to live in pain for years, for me that has now healed, but it did lead to anxiety and depression, which I still battle daily. My blog, like yours, is my inspiration too, it keeps me focused when moments are hard. Thank you for opening up, you are so brave and amazing xx Thank you also for sharing with #globalblogging
    I am co-hosting this week and am glad I found his to read

    Liked by 1 person

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