Welcome into my life with fibromyalgia. Perhaps someone of you has already heard about it or read about it. It is a chronic pain illness, which is still a little unknown and is not fully acknowledged yet. And that makes it difficult for us who have this chronic pain illness.
I’ve had a very long time the idea to write about this chronic pain illness in my blog. I’ve also considered whether I should run another blog next to my actual blog. But now I have decided to tell this story too and to give you a little insight into my life, besides my recipes. My life with fibromyalgia.
What is it about fibromyalgia?
On the medical side, fibromyalgia is a non-inflammatory rheumatic disease. This disease can’t be detected by inflammatory values in the blood like other rheumatic illness.
It is a so-called chronic pain disorder. You always feel pain in different body regions, which always wander through your body, always in other places. It is a strong, stinging, burning pain. This disease comes up with flares who are sometimes stronger, sometimes less strong. You can’t tell when the flare is coming. Somedays it’s a little bit better, the other day is getting worse.
This chronic pain disorder is followed by mood swings up to deep depression. You feel wheezed, after a sleepy night.
Every day is a new challenge. Every day is planned in the here and now.
The worst thing that I’ve noticed is the weather. Especially when the weather is changing, I know that a few days earlier because my body reacts with pain and flares. Every movement hurts sometimes, even for the little movements, you don’t have any energy, you feel tired and exhausted.
A life with this chronic pain disorder with a little child wasn’t quite easy. I couldn’t make many activities, or only after checking my daily form.
Today, my child is able to understand that. He now knows when his mum is not doing well and then stands with his help at my side.
My husband is always there for me. Sometimes helpless, because he likes to do more. I thank God that I have my small family around me, who is always there for me, who supports me.
Because of this chronic pain disorder, I got problems in my workplace at that time, because I was very often missing. I was employed in the public service. Only then was not clear that I have fibromyalgia. It was until 2013. But I have pain attacks since the age of 25 and I am convinced that I have since then this chronic pain disorder.
Since 2009 I am now at home and try to do my job as a mother and housewife as well as I can. This was a new challenge in my life too because I’ve always gone to work. This chronic pain disorder makes it not easier to join a new job. To be honest, which boss will hire a person with a chronic pain disorder. And a mother with a child certainly not. Unfortunately, this is an experience which I’ve made very often. But this is definitely a different topic which I like to share another time with you.
This struggle is a challenge to fight every single day. Not every day is the same. There are good days and there are the bad days when I would like to run away and hide. But I am thankful that my family gives me a reason not to run away and hide! 😉
It took me a long time to get out of a depression because this situation took so much strength out of me.
Meanwhile, I have come out of the darkness and have learned to enjoy the good days with this chronic pain disorder and to take the bad days so as they are. My motto here is: Everything will be fine! 😉
What really helps me to distract myself is my work as a blogger. I am really happy to meet new people, get inspiration and share inspiration!
I am working intensively on this blog and am really doing this with a lot of love and work and try to find another way to earn a little money. A long difficult road, yet I want to go it!
I want to thank you all for your support!
Nice to have you!